ailbhe: (Default)
[personal profile] ailbhe
As per the posts 23 Nov 2004, 12 Oct 2005, and 19 July 2006, it's time for what is probably the final update on this...

  • I have moderate intermittent physical pain in my vagina, perineum and rectum, unrelated to posture, activity, or other external factor.

  • I need manual intervention to go to the toilet, and a step really, really helps.

  • Waiting to go to the toilet is very painful, unless it's just because of a full bladder; I can't feel when I have a full bladder at all.

  • Going to the toilet is not painful. You have no idea how much nicer this makes my life.

  • No-one grabs my butt in an affectionate manner anymore; the habit had to be broken as it hurts too much.

  • My short-term memory loss is under control thanks to techniques I learned during CBT.

  • I am always, always sceptical when I hear that a woman is doing well postnatally, unless I hear from her her own self.

  • I have given up trying to have sex. What's the point risking that much pain if I can't even get pregnant? The whole thing is just awful.

  • I do not have flashbacks about the first birth.

  • I do not have panic attacks about medical, infant-related, or sexual things.


It may not seem like much, but those last two statements? There was a time when I couldn't imagine such a life. I do not have flashbacks or panic attacks. I can go to the toilet without pain. This is AMAZING.

Of course, I do get scar pain, and c-section scar pain, and I can't have sex. But hey, you win some you lose some. I can excrete!

(no subject)

Date: 2008-02-18 11:03 pm (UTC)
From: [identity profile] beaq.livejournal.com
Can I still be angry for your situation?

(no subject)

Date: 2008-02-18 11:04 pm (UTC)
From: [identity profile] beaq.livejournal.com
Which isn't to say I'm not really glad you can excrete! Cos I am.

(no subject)

Date: 2008-02-18 11:08 pm (UTC)
From: [identity profile] hopeforyou.livejournal.com
I knew this affected you profoundly, but spelling it all out here the way you just did shows me how many ways it has affected you and what progress you have made.

Saying I'm so sorry you had to go through this and it continues to have such an impact on your life seems to fall flat when I say them. I can't convey how much I wish this didn't happen to you, and yet, I'm warmed by the fact that you have had improvements that are amazing for you.

In writing this, what kind of support and/or acknowledgement do you want from your friends list? Are questions welcome, even if they may be quite personal? I'm unclear on this, so I'm checking in.

I hope you continue to see progress. Even slow and steady progress is helpful.

(no subject)

Date: 2008-02-18 11:23 pm (UTC)
From: [identity profile] dreamalynn.livejournal.com
I take joy in your progress and I offer understanding of whatever feelings you have over that which is still not where you would like it to be.

(no subject)

Date: 2008-02-18 11:32 pm (UTC)
ext_9215: (Default)
From: [identity profile] hfnuala.livejournal.com
It is all just so unfair. I can't think of anything else meaningful to say.

(no subject)

Date: 2008-02-18 11:33 pm (UTC)
From: [identity profile] tammylc.livejournal.com
That seems awfully young to lose a sex life, to me.

Okay, here's one of those personal questions that you can choose not to answer but about which I am curious. I understand the penis-in-vagina intercourse is going to be right out, but are you able to participate in and enjoy other forms of sexual touching? Is clitoral stimulation painful too?

I, like everyone else, am angry and saddened by what's happened to you, but I hope that maybe there is some way to salvage something of a sex life for you.

(no subject)

Date: 2008-02-18 11:54 pm (UTC)
From: [identity profile] tammylc.livejournal.com
Sounds like seeing a sex therapist would be a good idea. Good luck. And I'm so glad that you have a good cuddle-life at least.

(no subject)

Date: 2008-02-18 11:56 pm (UTC)
pauamma: Cartooney crab wearing hot pink and acid green facemask holding drink with straw (Default)
From: [personal profile] pauamma
Thank you for posting this. And my compliments for your determination dealing with this.

(no subject)

Date: 2008-02-19 12:18 am (UTC)
From: [identity profile] hopeforyou.livejournal.com
I think there are things that happen to us that leave a mark on us, even if time passes and after a while, enough healing occurs that life passes for 'normal'. For many people with injuries and chronic illness, I think they adjust by defining a 'new normal' and leave hope for things being much better as something at the back of their heads.

Someone else already asked the question I was going to, so I have not asked, and I've seen your response already.

Yes, I agree that you are awfully young to lose a sex life, and I really hope you find ways to get that kind of pleasure back in your life. Maybe the sex therapy will help, or maybe there are more esoteric alternative things you could do to... reroute where the stimulation works? I admit my ignorance in this area, and it is a delicate issue to discuss.

(no subject)

Date: 2008-02-19 08:13 am (UTC)
juliet: Avatar of me with blue hair & jeans (blue hair jeans avatar)
From: [personal profile] juliet
Having wound up with issues around genital touching myself after a badly-handled medical procedure (nowhere near as bad as yours, but highly unpleasant bordering on abusive), I can recommend the sex therapist thing. You do need to be prepared to go in there & be open about things, though (progress, lack of progress, things that are upsetting you) as the first time I tried it I wasn't able to be honest with the therapist & it wasn't much use. Second time around was more useful - although we dug out a whole bunch of things that weren't what I'd expected. Still working on those.

(no subject)

Date: 2008-02-19 09:02 am (UTC)
From: [identity profile] k425.livejournal.com
I'm glad to see those last two. They matter. I'm sorry to see the ante-penultimate, though. You're right, you're far too young to be there.

Re: The state of the traumatic birth and PTSD

Date: 2008-02-19 08:01 pm (UTC)
ext_481: origami crane (Default)
From: [identity profile] pir-anha.livejournal.com
i'm still angry for you too every time you talk about it, but it's inspiring how hard you have worked, and what all you've overcome, despite having this trauma forced on you.

(no subject)

Date: 2008-02-20 07:47 am (UTC)
juliet: Avatar of me with blue hair & jeans (blue hair jeans avatar)
From: [personal profile] juliet
I explicitly didn't want either of my partners there (for reasons to do with ownership of my own sexuality - NB this is not to indicate that either of 'em was in any way at fault!) & that was fine. I think the default is (or was where I went) that they like to see the partner as well, but it's not obligatory.

I was told that if I wanted them to come along later, or as a once-off or anything, we could do that, but in the event we didn't.

(no subject)

Date: 2008-02-23 03:03 pm (UTC)
From: (Anonymous)
I went on my own for the first, then my partner went on his own for one, then I went on my own after that.

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