Making the right decisions

[ailbhe]

Well, cleaners was the right way to go, because now I'm able to get dressed every day and the children have even done some painting and other art stuff because I have the oomph to help.

Terry Pratchett is still dead, because that's how dead works. I don't approve.

I've taken steps to have a gardener come and help us dewinter the back garden so it's a good summer space. I usually do this myself but it's not worth the loss of energy. I *like* getting dressed every day.

I take the kids to Brownies now but I have to have a rest in the cafe after the walk there so that I can walk back, and the cafe closes just as Brownies starts, so I have to rest before Brownies, so I have to buy 3 kids drinks so we can all sit in the cafe. The good thing is that babycinos exist.

All my triumphs and achievements are so minor, so small, so trivial-seeming, but they are a big deal to me. I can shower standing up sometimes. I can walk around the block without crutches (it's a small block). I have been painting a little again.

I think I would like my world to be larger, and with more people in it. But it really depends on people coming to me, because I cannot go anywhere without a huge cost.

Comments

Good decisions are good.

[erik]

The decision that "paying other people to do things so you have the energy to do things you love" is a health care expense is huge. I have seen too many people fail to do that and let their quality of life suffer.

Re: Good decisions are good.

[birke]

The decision that "paying other people to do things so you have the energy to do things you love" is a health care expense is huge. Agree. I have felt very lucky when I was able to do this, and very discouraged when not.

[sashajwolf.livejournal.com]

Those don't seem like minor achievements to me (having had my own share of days when I can't get dressed.) I think you're doing really well. Go you!

[datagoddess.livejournal.com]

Yeah, these are not minor achievements. *hugs*

[rosefox]

That's pretty major! I still remember the triumph of being able to wash my own hair. When you can't do those things for a while, being able to do them again is huge.

I'm really, really glad you're both taking care of yourself and boosting your local economy by hiring workers. :) And I'm glad you're valuing your own energy and ability highly enough to put money toward things you want to do less so that you can do the things you want to do more.

[the-changeling.livejournal.com]

Oh, do I understand everyone has to come to us!

Have you applied for PIP, to help pay for your cleaner etc?

And it's a triumph if it's hard to achieve, no matter how seemingly small. :-)

[biascut.livejournal.com]

Yes, seconding this about PIP. I know the process can be pretty gruelling, so fair enough if it doesn't seem worth it. But if you're not applying because it's not really for the likes of you, but for people who are moar disabled/deserving/different, YES IT IS FOR YOU. :)

[ailbhe]

I might apply and then donate it to a charity.

[pauamma]

Yay decisions!

[kake]

These sound like big-deal achievements to me, too. Glad you've found some things that can help.

[flybabydizzy.livejournal.com]

Getting dressed every day is massive. Getting out is wonderful.
Do you have a shower stool?
I will see if I can work in a visit in the summer, as I want to break my journey from Freestock by calling in at my sister.
Wishing you well.