Update

Apr. 4th, 2023 03:03 pm
ailbhe: (Default)
[personal profile] ailbhe
So I haven't posted for a very very long time. Ugh. OK. November 2018 I turned 40, December 2018 my mother came for Christmas, and she left on 5 January 2019. We decided not to do any major travel in 2019 to give my fatigue a chance to recover so we didn't see her at Easter, and then in the summer she broke her first hip on Inis Mór, and the GP there got her helicoptered to Galway. So of course she was still recovering and didn't come for Christmas 2019.

Then we were beginning to make plans for Easter 2020 but in February I bought a 5l jug of hand sanitiser and we went into household lockdown on about 16 March.

We're all fine! We have had two positive tests - eldest and youngest - but almost no symptoms. We've been extremely cautious. We're still quite cautious. For a couple of years we had nobody in the house except the neighbours opposite when they had a fire in the middle of the night (and firefighters, police, their relations etc) and a couple of plumbers. Eldest didn't attend school in person at all from March 2020 until September 2021.

A good thing is that I started sewing masks and discovered I like sewing MUCH more than I realised.

We got my mother an iPad and an internet connection in spring 2020 and we've been able to FaceTime a lot over the last three years and it's been lovely. She broke her second hip last summer, in Midleton, and we went to see her in August; it was a calculated Covid risk but we were all ok and able to attend the DWCon afterwards. That was incredible, though we broke our personal risk rules once and that's when Youngest ended up with a positive test, shortly after we got home. But it was so nice to be among people again.

I have in general been living with what we're assuming is ME/CFS. I'm much better than I used to be, in that I am mostly able to get out of bed and sit in a chair, and get dressed, and stay awake for hours at a time. At the moment I'm usually only in bed 8-12 hours in 24, which is incredible. I mainly live in my attic space, which is lovely - I have my bed, an armchair, a TV, a sewing machine, a mini fridge and coffee machine, aloe vera plants multiplying unstoppably, and a skylight which fills the room with light. Rob brings my dinner up to me; I eat with the family less than once a month. I can go up and down the stairs but if it's not clear and tidy it's exhausting to move around or to sit and see all the work I'm not doing.

I'm not sure what to say about the children. They're great. They are amazing people who do amazing, ordinary things in amazing, ordinary ways. They're not really children any more but we have real trouble with category words like that anyway. We're about to enter the eight month period when they're all teenagers at once. They teach me all sorts and tell me off when I mess up.

We no longer have any cats; they lived very long happy lives but we're not all ready to get a new cat any time soon.

(no subject)

Date: 2023-04-04 02:47 pm (UTC)
pauamma: Cartooney crab wearing hot pink and acid green facemask holding drink with straw (Default)
From: [personal profile] pauamma
Welcome back!

(no subject)

Date: 2023-04-04 03:02 pm (UTC)
angelofthenorth: (Default)
From: [personal profile] angelofthenorth
Nice to see you back!

(no subject)

Date: 2023-04-04 03:27 pm (UTC)
bens_dad: (Default)
From: [personal profile] bens_dad
Welcome back!

(no subject)

Date: 2023-04-04 04:45 pm (UTC)
ladythmpr: (Default)
From: [personal profile] ladythmpr
*waves* It's nice to see you again!

(no subject)

Date: 2023-04-04 05:33 pm (UTC)
minoanmiss: Minoan lady holding recursive portrait (Recursion)
From: [personal profile] minoanmiss
It is always wonderful to hear from you.

Is A still fascinated by recursion? I always remembered that.

(no subject)

Date: 2023-04-05 02:47 am (UTC)
hobbitbabe: (Default)
From: [personal profile] hobbitbabe
I am glad to hear from you!

(no subject)

Date: 2023-04-05 11:54 am (UTC)
sfred: Fred wearing a hat in front of a trans flag (Default)
From: [personal profile] sfred
It's great to see you here. <3

(no subject)

Date: 2023-04-05 08:06 pm (UTC)
taimatsu: (Default)
From: [personal profile] taimatsu
Sending lots of love ❤️

(no subject)

Date: 2023-04-06 04:49 am (UTC)
hitchhiker: image of "don't panic" towel with a rocketship and a 42 (Default)
From: [personal profile] hitchhiker
hey, good to see you!

(no subject)

Date: 2023-04-06 02:34 pm (UTC)
minoanmiss: A detail of the Ladies in Blue fresco (Default)
From: [personal profile] minoanmiss

ahahah I'm glad I could be encouraging or something.

Thank you a lot.

(no subject)

Date: 2023-04-06 06:05 pm (UTC)
rosefox: Green books on library shelves. (Default)
From: [personal profile] rosefox
I'm so glad I happened to log into DW (which I do very irregularly) and see this update. It's good to hear from you! I think of you often and fondly.

ME/CFS is a beast, and I'm really glad you've managed to dodge getting covid on top of it.

Amazing to think of all your kids being teenagers, wow!

I'm planning to come to the UK for Worldcon in Glasgow next summer and it would be amazing to see you (outdoors masked etc.) if you're up for visitors.

(no subject)

Date: 2024-10-21 11:58 pm (UTC)
ljgeoff: (Default)
From: [personal profile] ljgeoff
I had looked for you a couple of years ago and assumed, as happens, you just got bored with journaling. It's so wonderful to see you!

The ME/CFS sounds horrible. But it sounds like this particular day was a good one for you.

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